After two difficult years, columnist Betty's Vertin's son Max won't go back to college this fall, a decision that has her breathing easier.
Commendamide, a metabolite produced by beneficial gut bacteria that are depleted in people with DMD, protects muscle cells ...
CureDuchenne has launched a national public service announcement campaign to highlight the urgent need for new treatments for ...
There are 24 hours in a day, so there should be enough time in each one to keep from feeling caregiver burnout, says columnist.
This year’s Be Their Muscle campaign has raised more than $641,000 to support the MDA Summer Camp and help advance research ...
Columnist Shalom Lim is grateful that his profile on the Purple Parade website highlights the importance of his disability ...
Key milestones have been met in a clinical trial testing a one-time treatment that aims to turn off the faulty gene in FSHD, ...
Hawken Miller is a talented young journalist who writes feature stories for Muscular Dystrophy News. He covers the latest news and information on a variety of muscular dystrophy topics.
Rob Stemple is a lifelong advocate for people with disabilities. He was diagnosed with FSHD in 1971 at age 14. Rob struggled with its’ affects for over 50 years. He lost his eyesight in a devastating ...
Duchenne muscular dystrophy, known for short as DMD, is a rare genetic disease caused by mutations in the gene that codes for dystrophin, an important protein that supports muscle cells during muscle ...
Histone deacetylase inhibitors are a treatment approach designed to work by blocking an enzyme that turns off gene activity. This may ultimately help by slowing muscle loss and disease progression.
I have been involved with the annual Parent Project Muscular Dystrophy (PPMD) conference since 2002. Back then, the conference was attended by fewer than 50 people, almost no one living with muscular ...