During a telehealth call, a renowned surgeon in Minneapolis told my parents and me, “We recommend surgery. It will be extensive — a TPIAT (total pancreatectomy and islet cell transplantation). This ...
Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...
I started my stride against CF in 1996. My closest cousin, Danny, and I were the same age — we liked the same things, went to the same school, and experienced life side by side. But he was dealt a ...
Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer. The Right to Try legislation allows individuals ...
Summertime and the livin' is easy…but in the summer months, there are some things that require special attention for people with CF. Here are a few tips to keep in mind as the temperature rises.
As an adult with cystic fibrosis, becoming a foster parent seemed like a great option for me and my husband to build our family. Although fostering three kids for our first placement certainly came ...
I swear, cold and flu season hits earlier and earlier each year! I'm fully prepared though ... I have a lot of tricks up my sleeve to try and stay as healthy as possible during this time. It was a ...
The Louisiana/Mississippi Chapter - Baton Rouge Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...
The CF Foundation is the world’s leader in the search for a cure for cystic fibrosis. We are dedicated to attacking CF from every angle. Help us by making a donation today. Every gift we receive – big ...
The West Florida Chapter of the Cystic Fibrosis Foundation welcomes you! Our Chapter covers the Gulf Coast of Florida, including Pensacola, Tallahassee, Tampa Bay, Sarasota, Ft. Myers, Naples and the ...
We have dozens of chapters across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a ...
Lily lives with cystic fibrosis and does not benefit from CFTR modulators. Through her writing, she sheds light on the experiences often left out of the conversation. When she’s not writing, you can ...